The Burys

The Burys

Monday, November 21, 2011

In The Womb- Vol. 3

Thankfulness.

As the Thanksgiving season is approaching, there has been an increase discussion about thankfulness. Obviously, it is easy to be thankful for the good things in our life, but it is often difficult to be thankful for the hard things in life. We may say we are thankful, but are we really?

As we prayed in our last staff meeting, I distinctly remember thanking the Lord for my pregnancy struggles. I have been struggling severely with nausea and other unpleasant side effects of pregnancy. Unable to eat, not able to go number 2, bloated and vomiting, came to a climax last week. I have not been able to enjoy food for the past 3 months. Needless to say, it took a lot of effort and convincing to say that prayer. After my prayer, I remember thinking to myself, "Jen, you are just saying that because you are suppose to." It wasn't until last Friday night that prayer became more of a reality.

Last Friday night at The Able Church, Pastor Tim had called up Molly to share about her Christmas plan for The Able Church to buy an animal for a family in need in a third world country. After Molly sat down, Pastor Tim called me up. It didn't register at first that he was calling on me. But when I realized he wanted me up front, I panicked a bit and thought, "Was I suppose to prepare something?" But then he proceeded to explain to the group how I have been struggling physically with my pregnancy. He wanted everyone as a group to gather around me to pray for me.

The members of The Able Church are very eager to pray for each other's needs and care for them. At least 15 people jumped out of their seats and gathered all round me, pushing their way in to try to touch me and laying hands on my belly. I was overwhelmed by the flood of love and care. (Even as I type this, I am overwhelmed with tears rolling down my face).

No, I was not instantly healed. I actually got nauseous on the way home and still struggling a bit (though things are better than last week!). I may struggle with this all the way through. However, last Friday night standing in that circle, there was a different healing. A peace was given to me that no matter what happens, I have a loving community around me. We will raise our child with so many people loving him/her and praying for him/her. It joyfully overwhelmed me to think about raising our child in the center of the disability community with the love and care he/she will receive. At that moment, a deep sincere feeling of thankfulness filled me. I am thankful for The Able Church, I am thankful for the Camp Daniel community, I'm thankful for my family...and at that moment, I truly experienced thankfulness for my pregnancy struggles so I could experience that love, care and peace that night.

In The Womb - Vol. 2

Parallels

I tend to try to find parallels of the physical things in this world that may teach us about spiritual things. I will think of common everyday things and see if there is a deeper meaning or parallel to something spiritual. For example, the fall and rise of the sun everyday could symbolize the death and resurrection of Christ. Maybe the reason we have to sleep at night is so we can experience His death and resurrection everyday.

Now, I don't know how true those things are and don't attempt to explain God and why He does things. Nor do I try to spiritualize every little thing in life. However, it is fun to think about. We do know in the Bible Jesus spoke in parables and used every day, common things like seeds and gardening to explain the Christian life.

This past week has been a real struggle being pregnant. Being nauseous, unable to eat, unable to go number 2, bloated and vomiting came to its climax. I have not been able to enjoy food for about 3 months. Needless to say, I've been trying to come up with a good reason/parallel for this horrid struggle. Last Monday night, I sat rocking in my favorite chair, with my hands on my belly trying to seek comfort and relief. Moaning, I said to my baby, "Baby, what is it you need?" And a small unheard whisper simply said, "Rest." That I know the baby needed rest. I've been busy with Special Olympics tournaments, church and working extra hours at a clinic. So I said, "Okay, Baby, you got my attention. I will rest."

Immediately, I thought about how many times the Lord finally gets our attention when we are faced with pain and struggles. We do all we can to seek relief before crying out to him and asking, "What is it You want me to do?" And the Lord will simply reply, "Rest." Our physical struggles call us to rest, just as our spiritual struggles and hardships call us to rest. And that was my first parallel.

My second parallel was a little more profound for me. As I was still sitting in my rocking chair with my hands on my belly, Psalm 139 came to mind "You knit me together in my mother's womb." Instantly I was overwhelmed with the sense of the Lord's presence. Just under my hands, the Lord's hands were putting together my baby. Though I know the Lord is always with me and near me, I never felt so close to Him as I did in that moment. It overwhelmed me so much, I shuttered to think of the reality of being so close to him.

Immediately, I thought about Daniel in the Bible. After he was given visions from the Lord, he lay extremely exhausted and weak. It was such an intense spiritual experience, it left him physically ailed. People throughout the Bible feared being in the presence of God, covering their heads, falling to the ground, and even died if they approached/touch God’s presence inappropriately (The Ark of the Covenant, the temple).
So that is my second parallel. With the Lord's hands ever so close to me, forming the baby in my belly, His presence is overwhelmingly too intense. It is such a spiritual experience that it is physically exhausting and ailing.

Again, I'm not going to take a theological stance on these ideas and I understand that no where would scripture support this idea. It may just be my way of coping and making sense of pregnancy pains. I do know God promised women struggles with labor, period. However, I also know that the Lord's hand is on me, forming that little baby. And feeling the Lord's closeness during the struggle makes the entire struggle worth it.

Sunday, November 13, 2011

Fatherhood

Have been thinking about how my life will take on a new direction. Ready or not I will receive the greatest gift that a person could receive, the gift of life. Looked at a father with his two year old young daughter and I found out that I could not wait for the day to arrive when I would have a child like that. I get overwhelmed with joy when I answer the question                 " Marceaux what has Jesus done in your life lately? " I think back at a period in my life when answering that question fostered resentment in my heart. I walked those long and boring laps around Mt. Sinai. Had a fella pour his heart to me while I was attending college. He expressed that life really was not opening up its doors for him and at the time those doors for me were closed as well. Well the difference is that Jesus has brought that fresh newness to my life, He has opened the doors once again. The great thing is that with the open door is the moral courage to walk through it into fatherhood. Thank you Jesus. Its been a long road.

Thursday, November 3, 2011

In The Womb

Being pregnant with our first child, I have jumped into a whole new world of experiences and lessons. I have learned a lot about my body and the many, many issues and concerns people have bringing a baby into the world. Overall, I have been shocked by the general attitude our society has for people with disabilities.

I have an app on my phone from The Babycenter. It tells me each day what stage of development our baby is in. It also gives helpful suggestions to help prepare you emotionally and physically. On the 4th week, the topic was the first prenatal visit to the MD. It talked about the "genetic and birth defect history" that is taken and screenings. It explains that these tests inform you about “your baby’s risk for Down syndrome as well as other chromosomal problems and birth defects.” In another place it states, “Many parents-to-be worry that their developing baby may have Down syndrome or some other chromosomal abnormality. Screening tests help you assess your baby’s chances of having this kind of problem.” So the first thing I am taught is that having Down syndrome is a “problem”. Further in the article, it continues to talk about “chromosomal abnormality”. It calls them “Biological errors”. Now I am taught that having Down syndrome is an “error”.

It goes on to say, “a woman who conceives a baby with an abnormal number of chromosomes will miscarry, usually early in pregnancy.” Then it says that “Down Syndrome is the most common chromosomal abnormality babies can be born with.” Hmmmm. So if babies developing in the womb with Down Syndrome do not miscarry, maybe they are meant to be born and they are not Biological Errors, problems or abnormal!

I borrowed a medical text book about pregnancy and birth from a friend of mine who is a nurse. Paging through this book that weighs about 12 pounds, I came across a section called “Medical Risks”. It was specifically under a section for mothers over 35. It reads, “The risk of conceiving a child with Down syndrome increases with age”. It went on to talk about the prescreenings for Down syndrome and again states, “increased risk of having a baby with Down syndrome.

So all our medical professionals are taught that having a Down syndrome is a risk, a problem, an error, and abnormal. How do you think the common lay person gets told by these professionals that their child has Down syndrome? In most cases, they are told something like this, “Sorry, to tell you…your baby has Down Syndrome.” And parents begin believing that it is a bad thing.

When we went for our first prenatal visit, the message was clear that having a child with abnormalities was not a good thing. The nurse went through a very extensive family medical history with the majority of the questions asking about these “chromosomal/birth defects”. Is there a history of Down syndrome, mental disabilities, Autism, or other birth defects? We were informed of the many prescreenings we could have to test for these defects and were asked if we wanted to have them. I turned to my husband with a huge smile and said, “Well, if we found out our baby has Down syndrome we could start celebrating early!” Curious to know the response of the nurse, I asked her what benefits these tests have. I asked her if the results of the test gave any help to the delivery and its safety. She said the findings of these tests tell us about Down syndrome and other birth defects, which really doesn’t affect the delivery process. However, the information helps parents decide if they want to terminate the pregnancy. I was appalled! I turned to my husband and said, “The only reason we would terminate the pregnancy is if the baby’s heart stopped beating.”

Many parents struggle tremendously when they are given news about a baby with a “defect”. I have friends that had a boy with Down syndrome and the initial response from most everybody was, “I’m sorry.” I was one of the only ones who excitedly cheered for them. I have other friends who also had a boy with Down syndrome and they were given a sympathy card by someone.

How could these situations be turned around simply by medical professionals being excited and delivering news in a good light? How much would it change if friends and family would be excited and not disappointed at such news? Think about how people with Down syndrome and other disabilities would feel about themselves if they weren’t told they were “errors”, “defects”, “ abnormal”, “problems”, and at some point in their life worth considered being terminated? No, they may have never been verbally told these things by someone directly, but that is the message they get through our attitudes, our actions, our thoughts, our lack of joy for them. And it all starts in the womb……

Wednesday, October 19, 2011

Living New

Had to write another blog. I hope that no one is listening except those who may be encouraged through my experience. Fatherhood is a great responsibility to take on, it will be great to see who I am through the eyes of another. I soon will listen with a stethoscope for the faint heart beat of my child that is just a bit bigger than a bean. So far the exploration into the process multiplication is mind boggling to say the least. Then comes the understanding of my humaneness as I have to keep giving, and providing more for someone who is new. Great I'm glad that I have purchased all my toys, but my maker may want me to share them with my new found buddy, exchange them for new ones or get rid of them just for provisions of daily sustenance. The point and the fun of it all is that I am willing to do anything for this new life and embrace the newness that comes with the package.

Tuesday, August 16, 2011

Fiesta del lago helena

Marceaux and Jen and their friends Marco and Juanita at Camp Daniel 2011.


Saturday, July 9, 2011

Packed up and on the way to camp!

,Four hitches, a coach bus, and a van in our caravan. Sure will be nice when we don't have to pack up camp and we have camp on our own grounds! And, unfortionately, we have to pack it all up and bring it back in two weeks and do it all again the week after.

Hey, we still need a nurse for July 17-23. We can still use counselors for 1 & 2 wks in August!





Tuesday, June 28, 2011

Lifetime of service

Let me introduce you to a wonderful gal named Marilyn, pictured below with her camper at Joni & Friends Retreat. She is an inspiration to me. In the last year she has served on four missions trips and volunteers continually at her church. I had to find out how old she was and she told me she'll be celebrating her 81st birthday!

I commended her and thanked her for her service. I told her she is such a great example as so many will use age as an excuse not to serve. I asked if i could tell others about her and share her age. She was delighted and said that would be her prayer. She wants to serve as long as she is alive and she wants to encourage others to do the same.

Thanks, Marilyn!


Sunday, June 26, 2011

Worship the King


Coming back from two weeks at Joni and Friends I was impacted with the thought that it really is all about one thing and that is worship. I really got to just watch and learn. I thank the Lord that I have many teachers who are so willing to teach me.

Marceaux

Why Don't you spend more time with me??

We just got back from two weeks of Joni And Friends Family Retreats. It was a great time seeing old friends and making new ones. One of our favorite friends is Ryan, pictured here. He is fun-loving with a gentle and yet curious spirit. When we get together we laugh alot.

One day, Ryan and I were talking about how wierd Marceaux is. Ryan ask me, "Why." I responded, "I don't know."  He asked again, "But why?" Now, Ryan has autism and likes to ask alot of questions and will persistanly keep asking. So this went on for awhile. Finally I said, "Well, that's just the way God made him." He proceded to ask, "Why?" I said, "I don't know. I'll have to ask him when I get to heaven." He again asked, "Why?" Running out of answers, I decided to ask him a question. "Don't you have any questions you'd like ask God when you get to heaven? If you could ask God a question, what would you ask Him?"  He said, "I would ask him why he doesn't spend more time with me."

I was shocked. Of all the questions we wonder in this world and all he wants to know is why He doesn't spend more time with him. I didn't quite know what do say. I didn't understand why he felt that way. So I asked, "Is Jesus your best friend?" He said, "Yes." Then I said, "Well, if you asked Jesus to be your best friend, he is always with you. He is always spending time with you."

I left that conversation still wondering why he felt that way. From what I know about peole with cognitive disabilities they are very concrete thinkers; they have trouble understaning the abstract. So concepts like God are somewhat hard to understand. What they do understand is what they can see, feel, and hear. They understand friends, family and friendship. People with cognitive disabilities get their understanding about God and experience Him from thier tangible relationships around them (no matter if they have a disabilty or not). So what I truly think Ryan was asking me was, "Why don't you (all people) spend more time with me?"

I think Ryan was speaking out of his heart's need for love and relationships. He needs to be shown that God loves him and that God wants to spend time with him. How will he know this other than from what he experiences from his relationships?

Take the opportunity to build a friendship with someone who needs to be shown who God is and that He loves them! Thanks Ryan for teaching me that lesson!


Saturday, June 18, 2011

Discovery of GODs beauty

Discovery of those things that are from that which is outside myself. I have spent two years now with a camper and I finally caught a glimse of who he realy was made out to be. I was like hacking through the jungle. I did not know where I was going only one swipe of the machetty revieled that I was on the right path. The path was lead outside of myself and then into his heart. Easy to conceptualise but difficult to do. That intimate language that all of us have and that special place that we do not let but only a few. I came close in my campers heart. Just the simmplicity of cleaning his glasses and the joy that resulted was signaling that I was near. Milo spoke to his inner voice and the humerous reaction broke down those last few barriors. At last I viewed from a distance the true heart of my camper and what a sight. I bowed with complete admeration and respect because at last I had a true brother in Christ whom I would enjoy throughout eternity. Thank God for disability and the gift of moral courage that helped me persue the true beauty of my brother in Christ.

-Marceaux

Sunday, June 12, 2011

On our way to muskegon michigan for Joni And Friends Retreat.

Somehow we ended up downtown instead of driving around the city



Monday, May 16, 2011

More Updates

Last Saturday The Able Church had a workday up at Camp Daniel




Here Marceaux and Jen's Dad are trying to fix Karol's golf cart.




On the second nice day of spring, May 4th, Jen took her sewing work outside on the deck of our cabin. How's that for working conditions? She finished curtains for two rooms in the girls' dorm. (Thanks Mom for helping, too!)






Monday, May 2, 2011

What's been going on??

In an attempt to keep you informed...












The Able Church held its first winter retreat at the new Camp Daniel grounds in February.



We played a wild game of Animal Ball - that's broomball without the sticks!



The Able Church Special Olympics basketball team ended their season April 5th with a scrimmage with the Living Hope Church youth group.

Jen's brother Mark and his family visited GB with us and Jen's parents. Above is our newphew Aklilu and niece Eva.

We went to Madison to visit Jen's other brother, Craig and his family. Here we are taking a tour of Craig's work. (below)
We went to visit with one of Marceaux's campers from last summer.

On April 9th -one of our few nice days of spring, we did part of the waterfall tour in our neighborhood. Here is Jen at Pier's Gorge in Norway, MI. We also saw Long Slide & Smalley in Pembine.

The Able Church has it members participate in its services. Justin teaches on forgiveness.


Chuck plays the piano for our song service.



We celebrated our first Easter as a married couple with Jen's family.

Our Aunt Rose made her traditional lamb cake (a tradition from her mom). We shared it with the Camp Daniel family at our Easter taco dinner. Georgie ate all the Peeps!

Many workdays at Camp Daniel. Jen has spent many hours putting poly on boards for trim and tongue and groove for the dorms. We have had several college groups, youth groups and other groups come volunteer. Jen has been working on sewing curtians for the dorms now, too. Marceaux has been helping cut tile and grouting for the bathrooms, as well as other construction and mechanical work around the grounds.

We have been visiting colleges and churches to speak about Camp Daniel and disability ministry. Below, Jen is pictured speaking to Occupational Therapy students at Concordia University WI, where she gratuated from.



Sunday, February 20, 2011

What a Love

This week Able church hosted its St. Valentines day service. It was well attended and almost flawless. I got to do many different assignments during the celebration. Jen lead the worship and Pastor Tim did the message. There were many volunteers serving the meal. We really seemed like a team. Justin handled the video and Nick the sound. I just observed in the sound booth with Nick and enjoyed the sight that I saw. What I saw was a group that was worshiping our Lord with the best that they had. It was beautiful. I got to try to balance out all the different voices and not to contaminate its purity. What a privilege it is to be a part of this fellowship and to serve our members. Behold, love was the sight, love that was natural and pure, love that was well received by all who were there, love that will stay imprinted on me until we will all assemble in the beauty of heaven. I thank all who made the event a sight to behold and worked diligently so we could all take in its beauty. My hope is that all the events put on by our fellowship will grow and that many more who are low in their "love tank" will come and observe and be filled and proclaim the beauty of what they experienced to others. My dream is to see hundreds of our fellowship assembled and reaching out to Jesus with the worship that comes from deep within their hearts. This is when I will see my Lord crack a smile as tears of joy flow from my eyes. Please come and experience the power and love that comes from Able church jump in and become a part of our growing experience as we all serve our Lord Jesus.